蕭曉進
		黏多醣症四型
		透視罕見病:黏多醣症(一) 長不大的小飛俠 勇抗退化惡疾
		「佢哋笑我小矮人……冇人同我做朋友……」 
「我想爬上去!我要爬!」他咬緊牙關嘗試攀上滑梯,用盡力氣卻仍然停留在起點……
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他,胸骨凸起、雙手變形無力、雙腳呈O字,旁人嘲笑他是「小矮人」,其實他是另一個童話故事的主角──小飛俠。
因着體內的黏多醣一直累積,他如小飛俠Peter Pan一樣長不大,縱然如此,他卻有着樂觀及熱心助人的個性,憑着無畏無懼的冒險精神,征服一場艱巨的人生旅程。
他,是黏多醣症四型患者──蕭曉進。
	Other Causes
 
	
				
			
				Only Two Cases Worldwide
Siblings combat rare disease with smiles
				
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				Chen Yau Chun, Chan Ka Wa
Hereditary Spastic Paraplegia
				
			 
		 
				
			
				Nonstop Spasms, Sleep Apnea 80 times an Hour
Every night is a miracle for boy with SSADH
				
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				Ho Junjie 
SSADH
				
			 
		 
				
			
				Little Miss Sunshine: “No crying! No pain! I want to get better!”
				
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				Bux Hei Yau
Developmental Dysplasia of the Hip
				
			 
		 
				
			
				Brothers with Mucopolysaccharides
The mother Just wants to hear her elder son say ‘Mummy’ again
				
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				Hui Wai cheung, Hui shing hao
Mucopolysaccharidosis IIIA
				
			 
		 
				
			
				Estimated 4 years Left to Live
14-year-old “Dream Chaser” won’t let SMA stop her
				
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				Lai Kwan Yi
Spinal Muscular Atrophy
				
			 
		 
				
			
				Skeletal Deformation and Scarred Organs
Boy with MPS: “I am not giving up!”
				
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				Chu Yat Long
Mucopolysaccharidoses Type VI
				
			 
		 
				
			
				DMD Warrior: Your hug carries me through
				
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				Chen Tsz Kin
Duchenne Muscular Dystrophy 
				
			 
		 
				
			
				Treading the line between Life and Death
Aspiring 13-year-old Writer with SMA
				
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				Yiu Sum Yuet
Spinal Muscular Atrophy Type 1
				
			 
		 
				
			
				Two fingers left – Girl with SMA fights to live to the fullest
				
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				Josy Chow
Spinal Muscular Atrophy
				
			 
		 
				
			
				Girl with TSC gives back to society through painting
				
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				Michelle Lam
Tuberous Sclerosis Complex 
				
			 
		 
				
			
				Daughter with Rett Syndrome; Rapid Regression
Mom: "Waiting for the 3 little words"
				
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				Sze Ka Yan
Rett Syndrome
				
			 
		 
				
			
				Forever Smiley Little Angel
				
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				Chloe Chan
Angelman Syndrome
				
			 
		 
				
			
				At death’s door: “Son, I’ll take care of you till the very end”
				
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				Edward Young Kwan Lam
Duchenne Muscular Dystrophy
				
			 
		 
				
			
				Boy with Muscular Dystrophy, “Let him live for as long as he can”
				
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				Lok Chun-Ting
Muscular Dystrophy and Neurological Disorder
				
			 
		 
				
			
				The Spinal Muscular Atrophy  Girl: Soaring Against the Wind on Wheels
The Power of Three Fingers: P
				
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				Tse Cheuk Yau
Spinal muscular atrophy type 2
				
			 
		 
				
			
				Semi-paralyzed girl with a rare spinal glial tumor loves to adventure
				
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				Yeung Ka Ying
spinal glial tumor
				
			 
		 
				
			
				Rare Disease Boy with Glaucoma Facing Darkness
Mother Overcomes Depression to Illuminate Her Son's 
				
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				Lam Pok Yin
Rubinstein-Taybi disease (RSTS)
				
			 
		 
				
			
				"Rare Disease X File: Girl Becomes Multiply Disabled Over Three Years
				
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				Hester Chan
Unknown rare disease
				
			 
		 
				
			
				母子同病變 無懼連環醫療失誤 勇抗不治症
				
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				Wong Wai Lung
ATAD3A