Ho Junjie

SSADH
Nonstop Spasms, Sleep Apnea 80 times an Hour
Every night is a miracle for boy with SSADH

“I tuck him into bed every night, not knowing that he’s fighting on the brink of life and death. I feel so guilty” – Junjie’s Mom

Ho Junjie, Alexander
Succinic Semialdehyde Dehydrogenase Deficiency (SSADH)

Other Causes

母子同病變 無懼連環醫療失誤 勇抗不治症

Wong Wai Lung
ATAD3A

Only Two Cases Worldwide
Siblings combat rare disease with smiles

Chen Yau Chun, Chan Ka Wa
Hereditary Spastic Paraplegia

Little Miss Sunshine: “No crying! No pain! I want to get better!”

Bux Hei Yau
Developmental Dysplasia of the Hip

Estimated 4 years Left to Live
14-year-old “Dream Chaser” won’t let SMA stop her

Lai Kwan Yi
Spinal Muscular Atrophy

Skeletal Deformation and Scarred Organs
Boy with MPS: “I am not giving up!”

Chu Yat Long
Mucopolysaccharidoses Type VI

DMD Warrior: Your hug carries me through

Chen Tsz Kin
Duchenne Muscular Dystrophy

Treading the line between Life and Death
Aspiring 13-year-old Writer with SMA

Yiu Sum Yuet
Spinal Muscular Atrophy Type 1

Girl with TSC gives back to society through painting

Michelle Lam
Tuberous Sclerosis Complex

Daughter with Rett Syndrome; Rapid Regression
Mom: "Waiting for the 3 little words"

Sze Ka Yan
Rett Syndrome

Forever Smiley Little Angel

Chloe Chan
Angelman Syndrome