Hui Wai cheung, Hui shing hao

Mucopolysaccharidosis IIIA

Brothers with Mucopolysaccharides
The mother Just wants to hear her elder son say ‘Mummy’ again

A seemingly simple wish is far from being fulfilled.
A family of four with two lively and adorable sons was supposed to be a picture of a happy family, but it was suddenly discovered that both sons were suffering from the rare disease Mucopolysaccharidosis IIIA (MPS IIIA). The older brother's bodily functions and IQ had deteriorated to that of an infant, and he was unlikely to live past the age of 14. His parents only hope that the experimental stem cell therapy that his brother is receiving wi

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“Sometimes, when I see the two boys fighting over toys, I’m really happy” Wai Cheung and Shing Hao’s mother said, tears turn into smiles, “because when you know how to fight for toys, it makes them seem more like normal children.” A typical mother’s frustration, for Wai Cheung and Shing Hao’s mother, is a blessing.

Hui Wai cheung, Hui shing hao

Other Causes

Only Two Cases Worldwide Siblings combat rare disease with smiles

Nonstop Spasms, Sleep Apnea 80 times an Hour Every night is a miracle for boy with SSADH

Little Miss Sunshine: “No crying! No pain! I want to get better!”

Estimated 4 years Left to Live 14-year-old “Dream Chaser” won’t let SMA stop her

Skeletal Deformation and Scarred Organs Boy with MPS: “I am not giving up!”

DMD Warrior: Your hug carries me through

Treading the line between Life and Death Aspiring 13-year-old Writer with SMA

Two fingers left – Girl with SMA fights to live to the fullest

Girl with TSC gives back to society through painting

Daughter with Rett Syndrome; Rapid Regression Mom: "Waiting for the 3 little words"

Forever Smiley Little Angel

At death’s door: “Son, I’ll take care of you till the very end”

Boy with Muscular Dystrophy, “Let him live for as long as he can”

The Spinal Muscular Atrophy Girl: Soaring Against the Wind on Wheels The Power of Three Fingers: P

Semi-paralyzed girl with a rare spinal glial tumor loves to adventure

Rare Disease Boy with Glaucoma Facing Darkness Mother Overcomes Depression to Illuminate Her Son's

"Rare Disease X File: Girl Becomes Multiply Disabled Over Three Years

母子同病變 無懼連環醫療失誤 勇抗不治症

放棄自殺 小腦萎縮青年：「我選擇生存！」

「拇指姑娘」需日打激素 醫生難料成長變數

透視罕見病：黏多醣症(一) 長不大的小飛俠 勇抗退化惡疾

思想被困身軀 腦癱少女說不出的抉擇人生

肌萎港大畢業生 認病不認輸

無力揹水樽 難阻飛翔夢

Only Two Cases Worldwide
Siblings combat rare disease with smiles

Nonstop Spasms, Sleep Apnea 80 times an Hour
Every night is a miracle for boy with SSADH

Estimated 4 years Left to Live
14-year-old “Dream Chaser” won’t let SMA stop her

Skeletal Deformation and Scarred Organs
Boy with MPS: “I am not giving up!”

Treading the line between Life and Death
Aspiring 13-year-old Writer with SMA

Daughter with Rett Syndrome; Rapid Regression
Mom: "Waiting for the 3 little words"

The Spinal Muscular Atrophy Girl: Soaring Against the Wind on Wheels
The Power of Three Fingers: P

Rare Disease Boy with Glaucoma Facing Darkness
Mother Overcomes Depression to Illuminate Her Son's

母子同病變無懼連環醫療失誤勇抗不治症

放棄自殺小腦萎縮青年：「我選擇生存！」

「拇指姑娘」需日打激素醫生難料成長變數

透視罕見病：黏多醣症(一) 長不大的小飛俠勇抗退化惡疾

思想被困身軀腦癱少女說不出的抉擇人生

肌萎港大畢業生認病不認輸

無力揹水樽難阻飛翔夢