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Love can make all the difference.
At Lifewire, we believe that love has the power to change society. Lifewire is Hong Kong’s very first charity crowdfunding platform for children with rare diseases. By documenting and sharing patients’ stories with the public, we bring together patients, charities, donors, and medical experts into a tightly-knit community to provide a channel for those in need to receive help.

母子同病變 無懼連環醫療失誤 勇抗不治症

「我感受到好多挫折，好多唔開心、唔愉快嘅事情，我真係覺得點解我自己要生存喺呢一度。」- 黃偉龍

Wong Wai Lung
ATAD3A

Only Two Cases Worldwide
Siblings combat rare disease with smiles

“We can’t afford for them to visit the doctor at the same time, they have to take turns.” – Yau Chun & Ka Wa’s Dad

Chen Yau Chun, Chan Ka Wa
Hereditary Spastic Paraplegia

Chen Yau Chun, Chan Ka Wa
Hereditary Spastic Paraplegia

Nonstop Spasms, Sleep Apnea 80 times an Hour
Every night is a miracle for boy with SSADH

“I tuck him into bed every night, not knowing that he’s fighting on the brink of life and death. I feel so guilty” – Junjie’s Mom

Ho Junjie, Alexander
Succinic Semialdehyde Dehydrogenase Deficiency (SSADH)

Ho Junjie
SSADH

Little Miss Sunshine: “No crying! No pain! I want to get better!”

“Daddy, thank you! I love you!” - Hei Yau

Bux Hei Yau Annie
Developmental Dysplasia of the Hip (DDH)

Bux Hei Yau
Developmental Dysplasia of the Hip

Estimated 4 years Left to Live
14-year-old “Dream Chaser” won’t let SMA stop her

“Even if I only have my eyes left, I want to live!” - Kwan Yi

Lai Kwan Yi
Spinal Muscular Atrophy

Lai Kwan Yi
Spinal Muscular Atrophy

Skeletal Deformation and Scarred Organs
Boy with MPS: “I am not giving up!”

“My parents give me strength when they hug me, it’s the power of love!” - Long Long

Chu Yat Long
Mucopolysaccharidoses Type VI

Chu Yat Long
Mucopolysaccharidoses Type VI

DMD Warrior: Your hug carries me through

“I am also suffering, we’re not sure what is going to happen to him next. How much can he bear on his own?” - Tsz Kin’s Mom

Chen Tsz Kin
Duchenne Muscular Dystrophy (DMD)

Chen Tsz Kin
Duchenne Muscular Dystrophy

Treading the line between Life and Death
Aspiring 13-year-old Writer with SMA

“I like to read and write stories, I want to be an outstanding writer when I’m older!” – Sum Yuet

Yiu Sum Yuet
Spinal Muscular Atrophy Type 1

Yiu Sum Yuet
Spinal Muscular Atrophy Type 1

Girl with TSC gives back to society through painting

「瑤瑤平時好鍾意講「媽咪，我好錫你」，希望佢可以清楚表達自己嘅意願！」- 瑤瑤媽媽

Michelle Lam
Tuberous Sclerosis Complex

Daughter with Rett Syndrome; Rapid Regression
Mom: "Waiting for the 3 little words"

“Ka Yan seems like a cocoon being bound inside. It’s very hard and difficult if the situation could not be released. We don’t understand her. That’s why she feels very hard and difficult and it is the same for us.” - Ka Yan's Mom

Sze Ka Yan
Rett Syndrome

Forever Smiley Little Angel

“Whenever she nods in response, eats by herself, goes to the bathroom on her own, wears her own shoes…these all bring me so much joy!” - Chloe’s Mom

Chloe Chan
Angelman Syndrome (AS)

Chloe Chan
Angelman Syndrome